Wednesday, March 5, 2008

New Pics of Lindie and an Update on her 2nd Opinion


I finally took Lindie to the Studio for pictures.  Brian's favorite picture is the one on the top.  It looks like Cole has taught her some of his karate moves.

Wow.... Yesterday was a stressful day for Lindie and I.  We went to see Dr. Murray in Coppell for a second opinion about a hemangioma in her airway.  He was absolutely wonderful to us.  He spent a good 45 minutes to an hour with us.  He did another in office scope which was stressful but cool at the same time.  He had it hooked up to a camera and it was displayed on the TV in the room.  So I could see everything he was talking about.  He did get glimpses of below the vocal chords and he did not see anything.  He said he would scope her under anesthesia on Tuesday if I wanted to be absolutely sure  because the most common place for an airway hemangioma is subglottic.   Unless she was under anesthesia there is no way to be sure because he can't see past the vocal chords.  Brian and I agreed that if her symptoms get worse then we will opt for the scope under anesthesia.  Dr. Murray also said that kiddos with an airway hemangioma have a croupy cough and Lindie does not have this.  He also agreed with the first ENT who did a scope on her that her muscles may be underdeveloped causing the stridor and that she will likely outgrow this.  So that was all good news and we headed back home in the blizzard.  It took us 5 1/2 hours to get from Coppell to our house in Bridgeport.  We were stuck on 380 in one place for about 3 hours with no fresh bottles.  Lindie was a trooper and never even cried.    She just smiled while I cried.  I was freaked out to say the least.  It was so good to finally get home at 5:30.  Brian's dad had to pick Cole up from school early and Carson had to be picked up by Troy who works with Brian in Decatur.  Carson then got to spend some quality time with his namesake Wade.   It was good bonding time for the two of them.  Thank you all who helped with the kiddos and thanks to those of you who kept me calm on the phone while I was stuck in the blizzard.









Tuesday, March 4, 2008

2nd Opinion

I emailed Dr. Ducic and he wants me to take Lindie to get a second opinion.  He recommended a pediatric ent that deals with airway involvement.  So I will call tomorrow and get an appointment with him on Thursday.  He spoke with this doctor and he was overbooked but agreed to do Ducic a favor and see Lindie.  So hopefully our worries can be put to rest.....

Monday, March 3, 2008

Lindie Sleeping

Hello everyone.  I wanted to post this so maybe some of you that have had babies with reflux can reassure me that this is normal.  This is a video (you can't see her) of Lindie sleeping.  It is only 15 seconds long but at the very end you can hear her do this thing with her breathing.  We took her to see Ducic's partner and he scoped her in the office and he said he thought she had laryngomalacia (I'm not sure if this is how you spell it, I have taken a vic's nyquil).  Which is basically from what I understand the muscles are underdeveloped and cause this stridor sound.  I am so tired but she has been doing this a lot more often and when I layed down tonight I told myself if she does it again then I will record her digitally with the movie camera.  Well she did it right away and my camera only records 15 seconds at a time so I thought I would be up all night trying to catch her doing this again  but I got it on the first try.  So maybe someone can tell me to relax and go to sleep.