Waiting on appointment in Arkansas for Lindie

Today we went back to see Ducic.  After an hour and 4o minutes of waiting in the waiting room we finally saw Yadro.  He said that he noticed the growth and the deeper red color even from standing out in the hall way before coming in.  Which made me feel a little better because I have been feeling like I have been over reacting with the growth thing.  He basically went over everything again and restated everything that we already knew.  He said that it is growing rapidly and that it does have a darker color (which usually means that it is in the rapid growth stage) and he recommends treatment.   He said that looking at it from a surgical aspect he doesn't want it to go wider because of the loss of skin.  He said that he is a surgeon and he recommends we go to a pediatric dermatologist.  He recommended two, one in grapevine and one in Fort Worth.  Neither specialize in it, and we have actually taken Cole to both of them in the last year.  He said that treatment is going to vary on what doctor we take her to.  Brian and I both agreed today that since it is growing and Ducic recommends treatment we are going to take her to Arkansas.  Arkansas Children's Hospital specializes in vascular anomolies and has a team specifically for this.  Dr. Buckmiller's office (doctor at Arkansas Children's Hospital) contacted me last week and said she would recommend laser and maybe steroid injections.   So now we are waiting to hear back from the RN  that works with Dr. Buckmiller to schedule appointment.  She is in surgery today with Dr. Buckmiller so we probably won't hear back from her until tomorrow hopefully.    She wants to see her on a Monday and do the laser treatments on Tuesday because we are coming from out of town.  

From what I have researched on the internet the pulse dye laser has had very good results in reducing the red color and stopping the growth of the hemangioma.   Brian has had issues with the doctor in NYC because of three reasons.  One is that he is not in a children's hospital, two he did his residency and medical school in South Africa, and three he does not accept insurance.  I have joined a couple of support groups online and have learned more about the doctor in NYC.  He seems like he is all about the almighty dollar and not about the kids.  I was actually contacted in a support forum by someone that is paid by him trying to recruit me to bring Lindie to him.  I found this very strange and was very put off by this.  So I have since realized Brian's first thoughts about him were right.  So we feel like we are taking her to the right place.  We hope that we can get her in to Dr. Buckmiller soon.  It usually takes a month to get in with her but they do make exceptions for urgent cases.  So if they feel that her case is urgent they will fit her in.  So hopefully we will get some answers soon.  We will keep you updated.  Thank you for all of your prayers and thoughts.  They mean more than you know.